Saturday, April 12, 2014

Smelling The Roses

Over the past month and a half I feel like I've been on the worlds largest roller coaster, with no end in sight. Long downward drops, steep uphill climbs, fast corners that rip your head back and to the side, all the while trying to remain calm and optimistic.

I've spoken to many of you personally, through email, and text message. Keeping in contact with my friends and family are important to me. I don't want to be unplugged, unreachable, or locked away. I've received hundreds of prayers, well wishes, letters of encouragement, and tokens of support and friendship. You will never know or understand how much this helps me get through each day.

Connecting with each of you is just as therapeutic for me as I assume it is for you. I could not imagine trying to fight this fight without all of you at my side. I want everyone who is interested to know what's happening and stay connected (I assume that's the case if you are reading this.) And while I will continue to share updates and what is happening next, the level of detail is not important, in fact it causes me stress because I'm not able to answer everyone's questions, you guys are a smart bunch of cookies.

As I had mentioned a few days ago, we had a very important and critical meeting with a doctor to discuss the mountain of test data and talk about surgical options. We had the meeting. We talked about each option and each possibility. The bottom line after the meeting was it's a tough call. I don't want this to come across as a negative why me, why me, discussion. The plain truth is, this is a tough cancer, in a tough spot, combined with other health issues I have, makes surgery an even tougher and more risky proposition than we had hoped. And of course chemo and radiation are on the table as well. Neither is fun, and neither are the ultimate answer, because there just isn't one. It's picking the lesser of two evils so I can continue to fight a good fight.

One thing I've tried to remember is no one is to blame for this cancer, except possible choices I've made with my health. I'm not questioning my faith in God, not blaming God or anyone else for that matter.  I don't have time, patience, or energy to blame. As most of my friends and family will attest, I'm someone who wants to move fast. I'm ready, have been ready, for several weeks, to get a treatment plan underway.

Please understand things like stage, phase, life expectancy, percentage, time frame, aren't important for our discussions. That's personal and private, and only cause me and my family stress having to discuss them over and over again. My sweet wife is dealing with something far beyond what either of us could have imagined at this time in our life. I'm heartbroken the worry, stress, and uncertainty this brings her, and the tough decisions we need to make. I'm heartbroken my children have to experience worry, stress and uncertainty about this as well.

I'm smelling the roses while I still can. Everyday grows more precious. I'm not worrying about the coulda, shoulda, wouldas. Doing the things we keep putting off for another day. That day is here.
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Thursday, April 10, 2014

Still Waiting Part Deux

I'm still here, waiting. I've been reminded on numerous occasions that waiting is probably the best thing right now, because we want all the doctors to have the information they need to come up with the best course of treatment. But that doesn't change the fact I'm getting extremely impatient.

I don't really have anything new to report. I'm meeting with a surgeon tomorrow who could potentially be performing a liver resection. I'm hoping the discussion is that she is ready to move on to the next phase which is actually doing the surgery.

Next week is Salt Lake Comic Con FanX, and I have a concert on the calendar for next week as well. Those are two things I've been looking forward to for some time, and purchased tickets well before my diagnosis. I'm going to be bummed if I can't attend either of these (I may need to sell my VIP Comic Con ticket.)

I will update again tomorrow after I've had a chance to meet with the surgeon. Again, thank you for all the support, love, and encouragement.
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Monday, April 7, 2014

After A Few Days With Amazon fireTV

Once the Amazon fireTV was turned on, and connected my Amazon account without any action on my part, I was excited to get right into it.

The obvious difference between the fireTV and other streaming boxes is the fireTV is based on the Android operating system. The biggest difference with this box over others is the natural integration with Amazon Prime Instant Video. Just like the Kindle where books are the primary interface, Prime movies and TV shows are the primary interface, Netflix, Hulu and others are secondary apps.

Finding items to watch is as simple as speaking into the remote what you want, and it did a great job of finding nearly all the items I searched for. At first it was a little clunky, I was pressing the speak button and letting go then talking into the remote. Nothing was happening. Turns out you need to hold down the speak button until you are through speaking. Either I didn't see the instructions or I was trying to use it like Siri. The other thing that I thought was weird is I couldn't speak my username and passwords when setting up Netflix and Hulu? Seemed like I should be able to do that just as easily as speaking a search.

I like that the remote is very minimalist, however, the ring used to navigate left, right, up and down, should have some kind of arrows on it for those not used to that kind of interface. I was ok but my wife wasn't sure what to do to go back and forth.

I haven't had time to check out games, but I'll get there. I don't see games becoming a huge boon for this device as people aren't trained to use their streaming media box as a game console, they are using their Xbox for that.

Everything about this box is excellent. The thin size, speed, and simple remote make it a great choice. I'm certainly glad I picked it up.
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Thursday, April 3, 2014

Why I'm Ditching Roku For Amazon Fire TV

Amazon Fire TV

I've been a Roku fan for a while, owning versions 1 through 3 and several variations. I don't have cable TV and use streaming almost exclusively, Netflix, Amazon Prime Video and Hulu Pro are my main stays. But throw in Plex streaming from a local server and Roku struggles.

The three things that sold me immediately on the Amazon FireTV (affiliate link) were

  • Quad core processor - screaming fast

  • 2GB of on board memory - reduces buffering

  • Voice search - find things without using the crappy single character on screen search


I'm not a gamer, but games are included with this box. I'm sure that will be one way of bringing devs into the fold. I should be getting the device tomorrow and will post what I find, but in the mean time, go buy one right now.
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Tuesday, April 1, 2014

Angiogram

Over the past couple of days my dad has had a few tests to determine if he would be a good candidate for a procedure that would allow the doctors to surgically remove the tumor on his liver. We still don't know the outcome of the Pet Scan from last week, but the Angiogram performed today seemed to have very positive results. The Angiogram test was to take a picture of how his blood vessels are laid out and how they supply blood to the liver and surrounding organs.

We're hoping the oncologist and surgeon find both tests positive so a surgical procedure can be performed that will help my dad fight the cancer quicker. More to follow.

 As always, we appreciate the love, thoughts and prayers from everyone.
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